Walk for Darier’s 2025
On October 19th, we walk together to amplify patient voices and strengthen the Darier’s community. This day is about connection, awareness, and standing side by side with those impacted by Darier’s Disease. Whether you join us in Chicago or participate virtually from home, every step adds to the momentum, every story helps raise understanding, and every voice makes our community stronger.
Why This Walk Matters
The Walk for Darier’s is more than a 5K, it’s a movement to raise awareness and bring visibility to this rare skin condition. Every step taken shows support for those living with Darier’s and helps strengthen our community. Walking together, whether in Chicago or virtually, creates connection and hope worldwide. By joining, you’re helping shine a light on Darier’s Disease and making a meaningful impact.
Who
Patients, families, clinicians, friends, and allies.
Where
City route with accessibility support; virtual option from anywhere.
What to expect
Warm welcome, short remarks, supportive community, and accessible route features.
Detailed Schedule
- Check‑in and Welcome
- Opening Remarks and Route Briefing
- Group Walk with rest points and shade stations
- Community Time: meet peers, share stories, take team photos
- Closing Thanks and Next Steps
A detailed timeline with exact times will be posted the week prior. Please arrive early if you need additional time for check‑in.
Registration
All abilities welcome. Strollers and service animals are encouraged. Virtual participants receive a digital toolkit with social graphics, team badges, and a flexible route plan!
Safety and Accessibility
Your comfort is our priority! We'll provide water bottles and a light snack, along with information about accessible bathrooms and suggested drop-off points.
After the Walk
We’ll publish photos, impact highlights, and thanks to every team. Funds raised will be allocated to new guides, translation priorities, and community platform improvements. You’ll receive an email summarizing exactly what your steps made possible.