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We’re Here to Help

If you have questions, ideas, or need support, send us a note. We welcome messages from patients, families, clinicians, researchers, and partners. Your feedback shapes what we create next.

How to Reach Us

Use the contact form to share your message and select a subject so we can route it quickly: General, Media, Clinical Advisory, Partnership, or Support. We aim to reply within two business days.
If your question requires medical advice, we’ll point you to appropriate resources—care decisions should always be made with a licensed clinician.

Before You Write

Research Hub

Plain‑language summaries with questions to discuss with your provider.

Community Groups

Peer insight on daily routines and
practical tips.

October 19th Walk

Peer insight on daily routines and
practical tips.

Accessibility and Language Support

Tell us which language you prefer and, when possible, we’ll respond in that language or provide a translated resource. If you need large‑print or high‑contrast materials, mention it in your note.

Media and Partnerships

For interviews, expert commentary, or collaborative projects, choose Media or Partnership in the subject dropdown. Include deadlines, topics, and any background materials so we can respond precisely and on time.

Clinical Advisors and Contributors

If you’re a clinician or researcher interested in contributing reviews or guidance, we’d love to hear from you. Our community benefits when science and lived experience work together.

Before You Write

Prefer to stay informed quietly? Join our mailing list for monthly highlights: new resources, event reminders, and research explained simply. We keep emails short and useful.

Community Guidelines Reminder

We protect privacy and dignity across all channels. Please avoid sharing sensitive personal details in the form. If you’re in crisis, contact local emergency services or a trusted hotline in your region.
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