Walk for Darier’s 2026
On September 13, 2026, we walk together to amplify patient voices and strengthen the Darier’s community. This day is about connection, awareness, and standing side by side with those impacted by Darier’s Disease. Whether you join us in Chicago at the Lincoln Park Waveland Tennis Courts or participate virtually from home, every step adds to the momentum, every story helps raise understanding, and every voice makes our community stronger.
Why This Walk Matters
The Walk for Darier’s is more than a 5K – it’s a global movement to raise awareness, celebrate our incredible community, and support research for this rare skin condition. Every step taken shows support for those living with Darier’s and helps bring hope and visibility worldwide. Whether you are walking along the Chicago lakefront or in your local neighborhood with friends and family, your participation makes a meaningful impact and reminds every warrior that they are never alone.
Who
Patients, families, clinicians, friends, and allies.
Where
Sunday, September 13, 2026 10:00 AM – 12:00 PM Chicago: Lincoln Park Waveland Tennis Courts (3650 North Recreation Drive, Chicago, IL 60613)
What to expect
Warm welcome, short remarks, supportive community, and accessible route features.
Detailed Schedule
- Check‑in and Welcome
- Opening Remarks and Route Briefing
- Group Walk with rest points and shade stations
- Community Time: meet peers, share stories, take team photos
- Closing Thanks and Next Steps
A detailed timeline with exact times will be posted the week prior. Please arrive early if you need additional time for check‑in.
Registration
Free to register! All abilities are welcome. Strollers and service animals are encouraged. Virtual participants receive a digital toolkit with social graphics, team badges, and a flexible route plan!
Safety and Accessibility
Your comfort is our priority! We'll provide water bottles and light snacks, along with information about accessible bathrooms and suggested drop-off points at the Lincoln Park Waveland Tennis Courts.
Social Sharing
Walking with us? Snap a photo of you and your group during your walk and share it on social media! Be sure to use #WalkForDariers2026 and tag @decodingdariers so we can celebrate your journey together.
After the Walk
We’ll publish photos, impact highlights, and thanks to every team. Funds raised will be allocated to Darier’s Disease research, new patient guides, translation priorities, and community platform improvements. You’ll receive an email summarizing exactly what your steps made possible.
Questions?
Use the event inquiry form for team setup, sponsorships, or accessibility questions. We’ll respond as quickly as possible with clear next steps.